the cost of immobility

On the advice of my consultant, I’ve been forced into ‘complete rest’ recently. Somehow my lower back started acting up, and six weeks later not only is it not recovered, but I keep ‘setting it off’. It’s a rollercoaster.

As a consequence of my indeterminate (thus far) back issue, I haven’t been to dance or do hydrotherapy in weeks. Complete rest for me is extremely difficult. I am used to just throwing myself into things, and my body coping. The advantage of being strong and bendy is that I’ve always been able to do virtually anything without any serious consequences. I always get injuries, yes, but they clear up more or less in a few weeks. Now I am finding that things simply aren’t healing; my chronic pain has escalated, and it seems that my early arthritis (common with hEDS) is impacting everything.

So. What of mobility?

I have mentioned before here my reliance on dance as a way of shifting trauma. Dance has always been the way that I manage to stay in touch with my body — not disassociate, be grounded, be meditative, etc.

Free movement in my environment has been crucial to my mental health for decades, and, probably more than anything else, preserves my wellbeing and my belief in the future.

I noticed when I had my hip replacement operations that within a couple of weeks I felt low. Everything seemed to stop. I felt paralysed, unable to help myself. Useless. But each time, I knew the end was in sight: slowly slowly I began to move again. I had goals. I did physio diligently. And in each case, I was walking well by six weeks post-op.

My current situation is different however. The end of my immobility is not in sight. The cause of this pain and reactivity is unknown. It’s not clear that I will dance again, though I will do everything in my power to get there. I have no exercises to do, no agency in this. Except to be patient.

Which is not my top personality trait, if I’m honest!

I suspect that immobility triggers many Child Sexual Abuse survivors. There are several aspects of this for me:

  • I froze while I was being abused .
  • I could not walk or run away from my father; I was stuck.
  • I could not push my father off of me. I could not move my arms. I was afraid he would do something ‘worse’.
  • I stayed still in order to ‘disappear’.
  • I felt in danger of imploding, the withheld fear and panic inside me almost overwhelming.

Helplessness — true helplessness, powerlessness — is extraordinarily grinding. Your body seizes up much like your mind does. You turn into a rock, and cannot reach out. You cannot do anything to help yourself. You simply cannot. You feel yourself slipping into invisibility, nearly losing yourself in the process.

Immobility, for me, equals being nothing. Not being able to dance, for me, risks dissociation. It can also bring the inner turmoil of CPTSD: bad dreams, flashbacks, the ramping up of despair.

I am completely aware of what immobility means for me. But my reactions are not something I can control. They are hard-wired.

I am much stronger now than I was when I was a child, of course. I have more to live for, a lot more hope. And I know that whatever happens, I can bear it. But lasting through, time and again, does come at a cost.

***

(Side note: I won’t be excerpting Learning to Survive for a little while. I’m all good though, and am so grateful for everyone’s companionship and belief.)

going back (5)

Three weeks ago today in San Antonio, Texas, my cousin Jamie (more about my love for him here), my cousin Linda, Jamie’s wife Patricia, and I scattered my mother’s ashes across the graves of her (and their) beloved grandparents’ graves.

I read the Hopkins’ poem God’s Grandeur , and anyone who wanted to say something, said something. There was no sugar coating of the difficult relationships we all had with her, but we all loved her.

It was wonderful to be with people who knew her, and who cared for her and for me, no matter what. My people.

The journey to Texas with my mother’s ashes was traumatic; I do not recommend it. I was completely unprepared for the separate examination and testing the box would need to undergo. On my own in an airport of rushing people, security folks handling ‘my mother’, I just stood there and sobbed and sobbed. The low point. But I had to get her to San Antonio. Which I did.

(After security, I found a place in the terminal to cry more, send a sad note to the family WhatsApp, and blow my nose. Within a couple of minutes I spoke with E in Boston, heard from M in Pittsburgh, and spoke with R in Cambridge. I am so grateful for my solid, loving family.)

I had not been to San Antonio in 34 years, since leaving for the UK. Yet there, especially after the scattering, sheer elation took me by surprise. I was so happy. I felt like having a party – dancing! Home at last. My home, which I had truly thought lost to me forever. It was so much more powerful and empowering than I could ever have imagined.

My mother would have been delighted, through and through. And would have utterly relished the cracking Tex Mex we had afterward for lunch. We toasted her with margaritas.

Goodbye Mom. Rest in peace now.

shifting trauma

This is a photo of me at about 16. I have no memory of it being taken, and no idea for what it was taken. One of my children found it in my high school yearbook. It was taken, it seems, to highlight my dance. There’s an article that goes with it. My memory loss from abuse is indiscriminate: I have forgotten a number of ‘good’ things as well as a number of ‘bad’ things. I have holes in my memory all over the place. In my memoir I call them ’empty rooms’. So I have an empty room around this photo.

I am, though, a die-hard dancer, and an accomplished one, it seems. I danced from age seven or eight until my late 40’s, with never more than a few months’ break. I pitched up at dance schools in London and Norwich UK, danced all the way through university in the US, through having children, and working. Indeed, I often performed yearly, with other adult dancers. And WHAT a blast we had!

I have always known that dance was somehow vital for me. I knew I was happy doing it. I knew that its lyricism and rhythm informed my writing over decades.

What I didn’t know — until literally October 2021, practically yesterday — was that dance shifts my trauma, and always has done.

I am now 57 years old. I haven’t been able to dance in nearly a decade. There are physical reasons for this: namely, dodgy joints from hypermobility, and early onset arthritis. I have, however, remained fit. And for the last 10 years, I pretty much thought it was FITNESS that dance provided for me. Fitness and moving to music. I really never thought much beyond that.

Fast forward to summer ’21. Like a lot of people, I’ve had a tough, tough 18 months. Two close bereavements, a second hip replacement, one of my children having a serious accident and then a major operation. My writing stalled. And three lockdowns. I remained fit by walking (after recovery from my op), but I felt trapped. I was static in some fundamental way. And I spiralled down, really for the first time in my life. I landed in a mild — but frightening — depression. The more paralysed I felt, the more debilitated I became.

I am fortunate to have a brilliant therapist ‘on tap’. I have turned to her numerous times over the last few years, and so this time, at my husband’s insistent urging (I was all ‘no one can do anything; I’m going to feel like this forever’) — I contacted her again.

One of her first questions was ‘what has made you the happiest in the last two weeks?’. I had one answer, that I was rather embarrassed about: watching Strictly Come Dancing.

The unsettling thing is — she didn’t even know I had been such a dancer. She didn’t know that I danced all the way through the abuse. That I never felt threatened while dancing, I never felt watched. I always but always felt inside my body. It was my space. It was my thing. Time and again, I found myself gushing to her, dance has been transcendent for me. It takes me entirely into my body, and entirely elsewhere, at once. But I had never articulated this to her; indeed, I didn’t really know it myself.

It turns out that dance, over and over, has re-centred me, locating my ‘core self’ again and again. Because one thing I do know: I have preserved my core self. In that I have been extremely, extremely lucky. I just didn’t know that dance harboured and protected it.

First, I agreed with my therapist to watch as much dance as I wanted, to let that happen and indulge in that, instead of — as I was feeling — thinking of it as kind of a fun waste of time. I needed to let my body experience it.

Second, my best bae Nancy suggested we go line dancing (this video is a dance I actually do in class). We went to the first one together. And, as those of you who follow me on FB know: I WAS INSTANTLY HOOKED. Line dancing is not high impact, doesn’t involve grasping a barre (thumb arthritis, ugh), or going up on half point much (toe arthritis, double ugh!). What it does involve is my brain and focus (32 or 64 steps in sequence, repeated to each side of the room in various combinations, for five minutes at a time) and my intense, now realised, love of being inside my body and moving through music.

Along with talking therapy, line dancing has proved transformative — and yes transcendent — these last two months. I now do it twice a week, and my biggest fear over this new Covid wave is that line dancing will stop. I feel almost like I could give up everything but that. Here’s hoping.

I’m writing about this now for several reasons. First: it’s the holiday season, and we all need to pay attention, if we can, to what supports us rather than depletes us. Holidays are not fun for everyone.

Second, I saw a genius video about how The Body Keeps the Score when it comes to trauma. Yes, there is a brilliant book about this. And here’s the video that brought it home to me: The Body Keeps the Score by Knowledge is Power

Illustrated like this, I now see so clearly that dance shifts trauma for me. It moves it to a place where it doesn’t haunt me or stay in the present. It shifts the trauma. The last two years in particular have seen my body in an unfamiliar and unhealthy stasis. And the old and new trauma stacked up. It had nowhere to go, and I didn’t even know how to begin to shift it.

Third, I read this brilliant blog yesterday on the Epione page, Co-Regulation in Times of Covid by Felicity Douglas (twitter @felicitydougie). About how trauma sticks around, and about the kind of unabashed deep care you need to do to shift it around to something you can live with. How it may circle back, the same or differently, and how we as survivors can’t really be ‘fixed’. How the nervous system — the body — is something we can’t always know or take account of. It does what it does. Indeed, my therapist really feels that everything unravelled for me this last summer as much due to past stresses as to more present ones. I had been living with high cortisol and adrenaline levels for years. YEARS. Like the author of this blog: my nervous system just gave up the ghost.

So. As we go into this time of year — so difficult and strange for so many — I just want to say: your body keeps the score. Find, if you can, what nourishes you. What brings you pure joy, however fleeting. And do more of it. Do it mindfully. Make space for it. Cherish it. And your ever-shifting body will return the favour.

***

This is the first mention of dance in my memoir, Learning to Survive: an ABC of Abuse:

Ballet

Soon after arriving in Virginia [aged six], I begin to dance. Has someone mentioned my adventures with the Pink Panther theme dance class back when I was living with my mother? Does my father recall that my mother loves to dance?

            I do not know when or how I realise I am good at it. And I never realise, while living in my father’s house anyway, the purpose it comes to serve. It provides rhythm, shape to my days. I do it away from the family. It is mine. It is my body.

            I inhabit that room. I make another house. And I live there, in one form or another, for as long as I dance, for 40 years.